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End of Life Care for People with Intellectual and Developmental Disabilities $15.00
ANCC Approved Disabilities Courses

End of Life Care for People with Intellectual and Developmental Disabilities

People with intellectual disabilities face many of the same issues at the end of life as people without such disabilities, as well as some additional issues and challenges. Today the life expectancy of a person with intellectual and developmental disabilities (IDD) is almost the same as it would be for a person in the general population. As people with intellectual disability live longer and are more integrated into the community, they outlive family caregivers more frequently. This often requires additional supports into advanced age, as well as different service locations, including choosing to receive care at the end of life in their own homes. The number of people in this situation is expected to rise as the “Baby Boomer” generation moves into this age category. This course provides an introduction to some critical issues that arise at the end of life for people with IDD. It is meant for all members of the interdisciplinary team that provide support and care. This course will introduce basic legal and ethical guidelines for decision making at the end of life. Advanced planning can provide clarity in complex, stressful situations in cases where people are unable to communicate or provide consent. Your knowledge of an individual’s preferences, as well as their basic rights and ethics, will help you support the person you are serving and their families. This course provides basic information about some common medical decisions that are included in an end of life plan, as well as information about specialized healthcare options such as palliative care and hospice. This is an overview course that provides general information; it is based on End of Life Care for Children and Adults with Intellectual and Developmental Disabilities (2010), published by AAIDD. Each state and agency will have its own laws, regulatory issues, and policies. After taking this course, staff should be sure to inform themselves about the specific policies and regulations that pertain to their role and responsibilities.
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End of Life Care for People with Intellectual and Developmental Disabilities
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